Newly diagnosed

By SherryPA Latest Activity May 31 at 6:38 am Views 1,114 Replies 4

SherryPA

Hi- I am a 54 year old female diagnosed with Moderate COPD 5 days ago. I am overwhelmed with incredible sadness, fear, guilt and confusion. I have a wonderful network of supportive loved ones, but feel so alone. I keep feeling that I am having a nightmare and will soon wake up and realize it is just a bad dream. It is still so surreal and unfathomable. My pulmonogist is on vacation and I had to ask covering doc to interpret results. All I got was the diagnosis and a scheduled follow up in 2 weeks. No resources or support. I can not stop thinking about death, suffocating, losing my independence.. Five days ago I felt like a perfectly normal, (albeit it, short of breath) strong, vibrant woman. Now I feel like everything in my world has turned upside down in an instant . Please help!

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Replies (4 replies)

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  • Dr Gary
    Dr GaryCA September 13 at 1:34 pm   

    Hey Sherry, it's great to meet you. I know it's rough to hear that you have a chronic condition. The emotions you are experiencing are all normal. But it's really important to get some emotional support. Have you been able to sit down and have a talk with someone about how you're feeling? We have a lot of great articles on emotional coping under "Living with COPD" in the links in the upper righthand corner of this page. So I encourage you to take a look at them as well. Please keep in touch with us and let us know how you're doing. You are not alone.

  • Erieshark
    Erieshark June 7 at 1:05 pm   

    I too am feeling overwhelmed with the diagnosis. I am getting supplemental oxygen today and that's making me more depressed. I know it is a chronic and progressive disease. I have had asthma my entire life so the issue of struggling to breathe is not new to me. But the idea of having to use oxygen has thrown me into a mental health crisis. I am reading everything I can but it just says to stop smoking. Well I did that decades ago. And it says to get more exercise which I can't do and better diet which I can do. Sorry I can't help but I can identify.

  • mizdoc
    mizdoc August 14 at 5:16 pm   
    Edited August 14 at 5:19 pm by mizdoc

    you have to realize, you can do (almost) everything you did before, but a a slower pace. And as far as not wanting to go on oxygen therapy, well that scared me too, and I fought against it, but once I gave in and realized how much better I felt with the oxygen, I am glad it was offered to me. I have asthma and COPD, and I belong to a COPD support group called Take a Breath. We are a social group and have a lot of fun meeting each week to talk, laugh, and sing…yes we sing. We actually have formed a group that goes out to sing at various locations. We have a blast. So I would say, look around for things you can do. And hopefully, you can find a support group like ours, or form one. You'd be surprised how good you'd feel after spending an hour with a bunch of other COPD'ers.
    Just remember…THERE IS LIFE AFTER COPD (diagnosis).

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